As the title says. For me it's always the same: at first, my boss is understanding, but when I miss work because of a migraine for the 15th time, that compassion kind of dulls away... At some point, they start complaining that I am unreliable and they always seem to be waiting for when I get better, as if there is a cure for this chronic condition.
I always feel like somehow it is my fault for being sick and I feel like I let my team down even though I know it's the last thing I want.
How do you guys cope with it? What do you tell your boss? How do coworkers view you? Any tips and tricks are always welcome!
8 Comments
n3m37h@sh.itjust.works · 2 pts · 1y
I've had good experience using psilocybin mushrooms. Do what you want with this information Here is a journal from
::: spoiler University of Toronto The authors’ research group recently reported on the preventive or transitional effects of a pulse regimen of low-dose psilocybin (10 mg/70 kg) for cluster headache in a randomized, double-blind, placebo-controlled trial.31 The dose (mildly psychedelic) and regimen (3 doses, each 5 days apart) were based on those used by patients.5 In the study, psilocybin reduced cluster attacks per week by approximately 30% over three weeks, although this reduction did not reach statistical significance against placebo (p = 0.251; n = 14).31 A Danish group also reported on the effects of the same pulse regimen for cluster headache and included measures of brain functional MRI.32 In this open-label investigation, there was an approximately 30% reduction in attack frequency in the four weeks after pulse completion (p = 0.003; n = 10), which correlated with hypothalamic functional connectivity changes after psilocybin.32 The hypothalamus is a key brain region in the pathophysiology of cluster headache :::
meneervana@lemm.ee · 1 pts · 1y
That sounds very interesting! I am already on a new med so I might have to wait to try something like that (I am on a CGRP targetting med now) but it sounds promising. What was your experience with it?
n3m37h@sh.itjust.works · 2 pts · 1y
I get really high for a night and next 6-12 months 0 headaches. I take em when I really need em. Same goes for depression, feel fantastic for a couple weeks after
noseatbelt@lemmy.ca · 1 pts · 1y
If it's really debilitating then I take a sick day. This is done through an app so I don't need to justify it. The only time I tell my boss is if it hits in the middle of the day and I need to stop working, which usually doesn't happen as I can usually tell when I wake up whether it's that bad or not.
I'm fortunate enough to work from home so it's nice that I can do whatever I need to get me through the day, like if I get nauseous I can puke freely and carry on without worrying about anyone hearing or walking through the office looking like garbage.
Mine are not that frequent though, at worst it's like once a month. I have a friend who has it really bad, she's been off work for ages because anything can set it off but she has no idea what, or how to get relief.
meneervana@lemm.ee · 1 pts · 1y
That's really fortunate! I'm so sorry for your friend, that sucks. I'm right in between; my migraines come often (about twice a week for a few weeks and then sometimes a few weeks with no migraines at all) and the pattern is kind of unpredictable. I do not work from home so if I am sick they have to know. Sometimes it feels like they don't really believe me or like they think I am overplaying it which I am not. But then sometimes when I haven't had a migraine for a few weeks Im like... "I'm cured! They're gone! I made this all up!" And then one day I get smacked with a migraine again....
noseatbelt@lemmy.ca · 1 pts · 1y
Have you been to see a specialist about it? My friend did, and made some changes to her lifestyle which helped a bit but they're not gone, just better managed.
meneervana@lemm.ee · 1 pts · 1y
Yes, I am being treated by a neurologist. I have tried a lot of meds and sadly none really seemed to help long term.
noseatbelt@lemmy.ca · 1 pts · 1y
I'm sorry to hear that. The changes my friend made are not med related, more on the side of diet and exercise, limiting stress responses, that sort of thing. Like I said, they're not gone so I'm not saying it's a cure, just that my friend feels she has a better handle on it.